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UI_at_80x24yesterday at 12:46 PM5 repliesview on HN

The day-to-day impact of being diagnosed is practically non-existant for me. It might explain "why" I might react to a specific stimuli but it doesn't stop the reaction. At best it's something to laugh about with my wife. It does also offer an early-warning system when I'm over stimulated and that I need to 'get home' soon.


Replies

alexfooyesterday at 1:09 PM

> The day-to-day impact of being diagnosed is practically non-existant for me.

Yeah, as the old adage goes: with an ADH?D diagnosis you get to try drugs like lisdex or methylphenidate (or the non-stim options if those aren't suitable), but with an Autism/ASD diagnosis you get some pamphlets, coffee morning invites and a reading list.

I don't have a formal diagnosis but my child does and that made me read lots on the subject. Authors like Eliza Fricker, Ellie Middleton, Pete Wharmby amongst others.

It's opened my eyes to many other related aspects, specifically Rejection Sensitivity Dysphoria (RSD) and Pathalogical Demand Avoidance (PDA) and how those play into both ADH?D and ASD. In reading about them I've worked out just how much they apply to my-undiagnosed-self and how understanding the triggers and recognising the early behaviour has allowed me to adapt to minimise their impact.

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TimByteyesterday at 3:27 PM

Yeah, that's basically the best-case scenario: the diagnosis doesn't change who you are, but it gives you a map of the terrain

seba_dos1yesterday at 3:12 PM

If you happen to have built a functioning support nets already, being diagnosed is at best a curiosity. If you didn't, or your existing ones have crumbled, it gives you tools to do that.

lazideyesterday at 2:02 PM

Being able to laugh about it, and know what is going on however is huge. Especially compared to being shit on all the time by others and self blaming (a common pattern!).

Mountain_Skiesyesterday at 2:00 PM

For my sister, getting diagnosed was important to her because she always felt like she was broken but now sees herself as simply different. I'm not aware of any workplace accommodations she has requested but it has been good for her self-esteem, which is a benefit in of itself.