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flatlineyesterday at 7:03 PM4 repliesview on HN

I have done a rigorous job of self diagnosis. I am autistic. I’ve also had the privilege of being able to pursue meditation, therapy, and other self development practices: I’m not as severely autistic as I was as a young man. I also have childhood trauma that I know contributes to many of my autistic presentations — see the last section on comorbidity. I also have some distinct ADHD symptoms but have never pursued that path because my hyperfocus tends to win out often enough that it’s not a hindrance to productivity. But it still causes problems elsewhere in my life.

For some people these diagnoses will be a very good fit with clear predictive outcomes. But many of us have a grab-bag of traits from several categories and still mostly get along in life, maybe with some assistance particular to one of these diagnosis but no more help overall than anyone else needs otherwise.

The diagnostic models suck. They are too broad here, too narrow there, misunderstood by professionals. I had a psychiatrist (mis)diagnose me as bipolar based on a 45 minute appointment when I was in some sort of crisis in my early 30s and that ended up haunting me years later when applying for a job with a security clearance. I didn’t even know about it at the time. This was one of the top rated doctors in a major metro area. What a sham.

The field is a mess. It has a terrible history of horrific abuse. Some autistic children still receive involuntary-to-them ECT. I think we should be supportive of research into these topics while also being critical of the very obvious problems with them.


Replies

neloxyesterday at 8:50 PM

Your experience illustrates something that often gets lost in the autism-vs-not-autism debate: many people don’t fall into clean diagnostic categories. You’re describing a profile that mixes autism traits, trauma adaptations, ADHD features, and developmental history, and instead of neatly labeling you, the system failed you outright with a bipolar misdiagnosis. That alone shows how fragile clinical certainty really is.

I think the most important part of what you wrote is that you changed over time. Whether that improvement came from meditation, therapy, maturity, trauma processing, or simply growing into yourself, it challenges the idea that autism is a static essence. Development, coping skills, neurology, and environment interact in ways the current diagnostic boundaries don’t fully capture.

Where I push back slightly is on the conclusion that self-diagnosis can automatically fill the gaps. For some people it’s deeply accurate and validating, for others it may explain one part of their experience but obscure another. As you said, many people carry a “grab-bag” of traits, and a single label can illuminate or compress that complexity depending on how it’s used.

You’re right that the field has a painful history and uneven present. Misdiagnosis is real. Forced treatment is real. Diagnostic tools are blunt instruments for a very diverse human reality. Supporting research while staying critical of the system makes sense, not because autism isn’t real, but because the categories we have are still evolving. Your story is a perfect example of why humility in diagnosis matters, whether it’s done by a psychiatrist or by oneself.

Edit:typo

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ok_dadyesterday at 9:25 PM

I was also misdiagnosed as bipolar due to a crisis years ago, which destroyed my career path in the military and post service. Since then I’ve been diagnosed as autistic, but much like you I’m just capable enough to kind of run the rat race but not quite capable enough to thrive.

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cwilluyesterday at 7:13 PM

> Some autistic children still receive involuntary-to-them ECT.

Adults too; ask me how I know.

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iambatemanyesterday at 7:19 PM

It’s never occurred to me that someone could become more or less autistic…could you say more about what that has been like for you?

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