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cocireyesterday at 5:09 AM2 repliesview on HN

They really only took a tiny piece of brain out, I guess. They didn't show me, sadly. :(

It was all occipital lobe so vision would have been the only thing affected. I had terrible vision in the lower-left quadrant of both of my eyes anyways, based on a medical field-of-vision test, along with my own tendency to bump into people and things on my left side (still the case).

Based on many electroencephalographs (EEGs), they decided my epileptic seizures stemmed from the lower right occipital lobe of my brain. It is kind of neat proof to me that the opposite side of your brain has effects on the other side of your body; right occipital lobe affecting left visual field.

So, they removed some brain, which actually did not affect my epilepsy at all, positively or negatively. I went into the hospital, got surgery, and was out maybe a week later - when that photo was taken. I had to go back a week or two later to have the staples taken out.

My lower left peripheral vision is worse than it used to be. I have about eight visual seizures that each last maybe a minute or two per day, but I can carry on a conversation and nobody even knows. I take seven pills every morning, and another four each night. I do not have a drivers license, car, or really ever plan to drive again, but that is kind of why I moved to live in a city where I can walk, take public transit, and get deliveries quickly/reliably.

On the nerd side, I track my seizures with my own homemade Python Django (w/ REST Framework) application, PostgreSQL, and an Apple Shortcut, usually from my iPhone or watch. Datasette and Highcharts make visualizing all my seizures tracked since December 2021 pretty cool.


Replies

sitkacktoday at 1:42 AM

Thanks for being so open about this. Have you worn one of those diy and prosumer EEG devices? So when you have visual seizure, I can only imagine it is somewhat similar to visual migraine, that is my only reference, you tap log it on your device which triggers some web request. Have you noticed any patterns? What do your doctors think of the data? You sound ideal for working in a neuroscience lab, :)

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interloxiayesterday at 7:32 AM

Do you also track /check your field of view?

A long time ago I made a simple tool to check my father's visual field changes due to cancer. At first he found it interesting to track his condition. Unfortunately it accurately tracked his condition and he, in my option wisely, stoped using it.

All the best managing and tracking

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