logoalt Hacker News

AnthonBergtoday at 11:20 AM1 replyview on HN

I'm just some rando and I do!

It sounds like a hero story – it's not, it's more an existential nightmare and funny story? – but I kind of accidentally came to start reading all kinds of papers. Then fiancée was diagnosed with a severe condition. And just by having read stuff I found myself needing to interject doctors during her treatment, quite pointedly, to avoid risk of harm to her and unborn child – with my view being confirmed every single time by another doctor's second opinion.

It's mostly about reading fast enough, not actually requiring a feeling of comprehension. Skimming and going fast through lots of stuff. With extreme humility!! And then bit by bit an intuition kind of grows and you cut through the jargon and get a feeling for the core things. The mights and maybes and relationships in things. And then sort of learning to trust and not trust that intuition and have it guide your reading. It mostly shows up as doubt – an active doubt? – rather than an opaque sense of not having any feeling for things. Then that sometimes refines away from doubt into a sense of clarity towards some mechanism that's probably at play. Keeping absolutely humble towards it is suuuuuuper important, and it's always necessary to retain the perspective of oneself as limited and fallible.

It's also very hard to get this stuff into words. Seems more nebulous and "cosmic" than it is. It's just how our minds and reading comprehension work. It's about feeding the pattern detection systems with... substrate? A handle on things?

There are a few reasons why it works. "Works" as in is beneficial and useful to read, beyond just trusting doctors. (Do trust doctors!, –Jusr... help them help you. That's the thing.) One reason is that doctors do not have time to read, even if they'd very much want to. This is sort of force-multiplied?... with the personalization aspect: It is immensely valuable to read molecular biology from the personal perspective of operating and being inside a specific instance of that molecular biology machinery. The doctor's view is always more general (and is always a guardrail of safety, in part because of that). Then another reason is that there is SO MUCH actionable science out there. Just eminently safe and very, very actionable. It's so hard to get it across how it might be so, how it could possibly be, but it is. It really is.


Replies

p1esktoday at 1:59 PM

Sure, I get it - trying to understand a specific condition affecting someone close to you. I personally have very little trust in doctors.

But, outside of this need, what actionable science have you learned and applied to your own life?