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roger_last Wednesday at 8:54 PM8 repliesview on HN

I personally don’t care who has access to my health data, but I understand those who might.

Either way, I’m excited for some actual innovation in the personal health field. Apple Health is more about aggregating data than actually producing actionable insights. 23andme was mostly useless.

Today I have a ChatGPT project with my health history as a system prompt and it’s been very helpful. Recently I snapped a photo of an obscure instrument screen after taking a test and was able to get more useful information than what my doctor eventually provided (“nothing to worry about”, etc.) ChatGPT was able to reference papers and do data analysis which was pretty amazing, right from my phone (e.g fitting my data to a model from a paper and spitting out a plot).


Replies

websiteapilast Wednesday at 9:02 PM

If an insight led you or a family member to being misdiagnosed and crippled would you just say it’s their or your own fault? If it were a doctor would you have the same opinion?

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nozzlegearlast Wednesday at 9:22 PM

> Recently I snapped a photo of an obscure instrument screen after taking a test and was able to get more useful information than what my doctor eventually provided (“nothing to worry about”, etc.) ChatGPT was able to reference papers and do data analysis which was pretty amazing, right from my phone (e.g fitting my data to a model from a paper and spitting out a plot).

If you don't mind sharing, what kind of useful information is ChatGPT giving you based off of a photo that your doctor didn't give you? Could you have asked the doctor about the data on the instrument and gotten the same info?

I'm mildly interested in this kind of thing, but I have a severe health anxiety and do not need a walking hypochondria-sycophant in my pocket. My system prompts tell the LLMs not to give me medical advice or indulge in diagnosis roulette.

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rightbytelast Wednesday at 9:01 PM

Are you giving your vitals to Sam Altman just like that? What instrument?

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h1fralast Thursday at 9:34 AM

I was going to be mad at this, but I remember our doctors are already using it without our consent

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csomarlast Thursday at 9:08 AM

> I personally don’t care who has access to my health data

There's a reason this data is heavily regulated. It's deeply intimate and gives others enormous leverage over you. This is also why the medical industry can charge premium rates while often providing poor service. Something as simple as knowing whether you need insulin to survive might seem harmless, but it creates an asymmetric power dynamic that can be exploited. And we know these companies will absolutely use this data to extract every possible gain.

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MattDaEskimolast Wednesday at 8:58 PM

I'm sorry, but seriously? How could you not care who has your health data?

I think the more plausible comment is "I've been protected my whole life by health data privacy laws that I have no idea what the other side looks like".

Quite frankly, this is even worse as it can and will override doctors orders and feed into people's delusions as an "expert".

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nprateemlast Thursday at 6:58 AM

Unless you're a doctor you don't know what it's made up though.

That's the trouble with AI. You can only be impressed if you know a subject well enough to know it's not just bullshitting like usual.

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moralestapialast Thursday at 12:17 AM

>23andme was mostly useless.

23andme was massively successful in their mission.

Sidenote: their mission was not about helping you understand your genomic information.

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