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Nevermarktoday at 12:04 AM1 replyview on HN

> Instead of a single row of data on a spreadsheet, I saw two, one below the other

I have keratoconus, where the cornea loses its shape and creates multiple focal points. I have several focal points in each eye.

It got so bad I couldn't read. So many copies of every letter that text looked like nests of spiders. Not an exaggeration, you could give me a page and a week and I wouldn't be able to decode it.

I also got headaches. Imagine trying to focus when all that does is vary which points in one eye match the other eye. It took a long time for my brain to stop trying.

If I look at a little "power dot" on some device across a pitch-black room, I can clearly see all the focal points, at random distances from a presumed center and each other. And a web of smeared focal lines connecting them.

It sounds cool, but you really don't want a focal web!

Fortunately, surgery involving soaking my cornea with a strengthening substance, and applying lasers to set it, improved my left eye considerably. And then, for unknown reasons, both eyes have improved spontaneously since then.

I feel very lucky to be able to read effortlessly, or at all, again.

For some reason, I sometimes have bad days and see mildly offset multiples. But mostly, the focal points are so closely clustered I don't notice them. Unless I try and read tiny tiny pill-cannister writing.

Now about my damn myopic lenses, ...

For most of my life I had noticeably better than 20/20 vision.

[0] https://en.wikipedia.org/wiki/Keratoconus (I am happy to say, my eyes never looked anything like that picture. They didn't have any visible misshaping. I think my corneas had subtle soft rippling.)


Replies

EvanAndersontoday at 12:25 AM

Fellow keratoconus sufferer here. Glad to hear about your successful treatment and spontaneous improvement. I definitely notice day-to-day differences in my acuity but nothing miraculous like that. Hope it remains good for you.

I "missed" corneal collagen crosslinking w/ riboflavin (the treatment I assume you're eluding in your paragraph re: soaking your cornea and applying lasers). When I was initially diagnosed the treatment was in trials outside the US. By the time it was approved in the US my corneal specialist said I'd "stabilized" and was likely to see no benefit for the procedure, only risk. My prescription has been reasonably stable for the last 10 years (at least as far as my astigmatism and keratoconus goes). Now I'm just descending into presbyopia hell.

Out of curiosity, do you have a history of allergies with ocular symptoms (itching, swelling)?

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