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A_D_E_P_Tyesterday at 9:24 PM7 repliesview on HN

Yeah, that's nice and all, but people suffering from tinnitus will tend to get downright angry when you tell them: "Just change your attitude to it." There's nobody with tinnitus who hasn't heard it 100x already. And it's not that easy.

It's unfortunate and surprising that there's still no effective drug, though lidocaine does, in fact, work. (Very temporarily, sadly.)

And time does help, at least sometimes. Over the past ten years, my tinnitus has gone from a 5/10 (highly annoying and noticeable above ambient noise, but not debilitating in any respect,) to something like a 1/10 (I don't even hear it unless I'm in an extremely quiet room and trying to sleep).

...But it sure ain't my friend, and never will be. It's hard to interpret it as anything but an annoying side-effect of self-inflicted nerve damage.


Replies

gerdesjyesterday at 11:21 PM

I've had it all my life. I'm 55. Mine is bearable and generally I don't notice it. Mine was caused by "glue ear" or more likely the operations to "cure it", which caused ear drum scarring and what not. I don't think that glue ear is a modern diagnosis anymore. Mind you doctors were only beginning to not advise people to smoke for their health in the early '70s.

I know what a variety of tinnitus is like (I've never known anything else) and I'm sure that other varieties can be horrendous. In my case time does not help.

Perhaps we ought to insist on a tinnitus spectrum, with multiple dimensions and some TLAs. I don't think that advice from a single data point is very helpful, or being charitable: annecdata. I'm glad it disappeared for OP.

Tinnitus ranges from, say, me (I'll live) through yourself (fuck! but I'll live) to committing suicide in despair at the extreme end.

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someguyorotheryesterday at 10:27 PM

> It's unfortunate and surprising that there's still no effective drug, though lidocaine does, in fact, work. (Very temporarily, sadly.)

There's some research, but yeah, I'm surprised that something that affects so many people and in some cases affect them very severely isn't receiving more attention.

At least there are things one can do immediately after the fact to limit nerve damage (applying intratympanic steroids etc), but even these things are often missed and haven't become part of routine procedure yet.

And I'm very curious why Shore's device is still stuck in FDA hell while the (from what I've heard) inferior version, Lenire, passed a long time ago.

zdragnaryesterday at 10:15 PM

30 or so years here, still 5/10 after all these years. I don't let it bother me for the most part, but it'll certainly never be anything but a negative thing.

I'll be honest, this is the first time I'm hearing "just change your attitude towards it" though. It's like the terrible advice someone with depression gets- just be happy!

emptysongglassyesterday at 10:31 PM

I mean people with tinnitus can choose to get angry about it or they can... change their attitude toward it.

I have it. I've changed my attitude toward it and made it my friend. I don't really know what else to tell you, but if you want to, the way is open for you. Or you can continue to see it as an aversive thing, and it will continue to be so.

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massysettyesterday at 10:20 PM

Meh. My tinnitus is a result of high-frequency hearing loss. The hearing loss is not noticeable - maybe I can't hear something just below what dogs can hear? - but the tinnitus is noticeable.

I have no idea how it happened - I never used headphones much, I don't work around machines or jet engines, etc. One doctor said it's just wear and tear.

It doesn't bother me though. I figure that nobody has a full stack of bricks when it comes to health, and here's one of the places I'm short. Compared to some of the places where other folks have health problems, this is not a biggie.

firebotyesterday at 10:55 PM

There's surgery...

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