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NegativeKyesterday at 9:45 PM2 repliesview on HN

We need PII to be so toxic that companies run screaming from the liability unless they have explicit consent[1] and a legit reason to house it.

A company selling me widgets wouldn't store or let another company store extra information about me if it subjected them the widget seller to HIPAA. Or better yet, something more stringent.

We don't need the government to be antagonistic toward corporations; we just need a government that makes the corporations internalize the risk they're making us take.

[1] The fact that ToS are enforceable when every court in the country knows that only a vanishly small percentage of people ever read them, much less understand them, means that they're not doing their job.


Replies

pull_my_fingeryesterday at 10:38 PM

> We need PII to be so toxic that companies run screaming from the liability

This is how healthcare workers used to treat health information protected by HIPAA, but it seems like the big corporations don't really even care about it. Nothing ever comes from violations besides slap on the wrist/cost of doing business penalties. You can't do anything without waiving all your rights, granting permission to be recorded, granting permission to use your photograph for anything they want, allowing your recorded audio to run through AI for transcription (and whatever else they want to do), granting permission to share your data with their partners, associates, and some vague description of "anyone we decide at a later date". That's before you can even sign-up, receive care, have a service rendered, enter into a business establishment.

There's pages of fine print documenting it all in vague terms that ambiguously safe guard the provider from any liability, but half the time, you don't even get to opportunity to (not) read it. It's just a link to go elsewhere and (not) read it. They add as many steps between you even reading what rights you're giving away, so that even the people who had a mind to do so would get fatigued, and they make you do it while there are people queuing up behind you, or you're almost done with your purchase/subscription, etc.

Everything is so consumer hostile (and expensive in America), but no "better" service can swoop in, because the established Big corps get to break all the rules or can afford the token penalties to give them an unstoppable market share no honest disruptor/competition could ever overcome. On even ground, no competent person would choose to be abused by our resident monopolies vs a reasonably similar priced local upstart, and a lot people would even pay (a little) more for a better experience/product/service.

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fusslotoday at 12:49 AM

so I've been watching the CMS symposium about "Burden Reduction". https://www.youtube.com/watch?v=fYyK0Hc43UE&list=PLaV7m2-zFK...

Most of the videos talk about reducing burden on clinicians. Specifically: sharing, accessing, updating patient history. Providing clinicians and patients guidance through the medical process through AI agents (that have access to your PII). the kaiser permanente guy highlighted ai's use in guiding billing codes. Dr. Oz spoke about getting pre-authorizations near instantaneously

I'm not sure how that gets accomplished without reducing liability or loosing restrictions. I wouldnt be surprised to see a continued attack on our healthcare privacy