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m463 • today at 1:57 AM • 2 replies • view on HN

same here.

also, when I was young I worried I might have herpes or something, but doctor told me canker sores are different from cold sores. Later in life, turns out there might be a chance I have crohns?


Replies

maddie0 • today at 2:52 AM

there's a big constellation of autoinflammatory health issues that affect people, especially the autistic/adhd types who might find their way to Hacker News in large numbers

if you are not already familiar, you should have your doctor go through https://allbrainsbelong.org/clinician-resources/ (this is a nonprofit's project funded through an HHS grant) and see what actually applies to you

Crohn's, irritable bowel syndrome, regular old heartburn, brain fog, chronic fatigue, depression, sleep apnea, hives, rashes, waking up in the middle of the night, heat sensitivities, Ehler-Danlos, joint issues, vascular issues, dizziness on standing, arthritis, long COVID... it's quite the list!!

(and it's really frustrating when (e.g.) a cheap allergy medication can solve half your problems and you go without it for years because no one's thought to connect those dots)

CobaltFire • today at 2:05 AM

I do have autoimmune issues, but I had a totally different gut issue that they basically hand waved as IBS due to those until a different set of docs realized it was a dysfunctional gallbladder. I had been dealing with weekly gall bladder attacks for a decade and then they pulled it.

Just to say, be careful with the diagnosis. They can be rather imprecise.