The late Jake Seliger and his widow Bess blogged at length about their experience navigating the medical system after his squamous cell cancer diagnosis. That was in 2023-25 though.
jakeseliger.com
bessstillman.substack.com
His articles forever changed how I view terminal diseases and my stance on how to manage them.
If I ever get such a disease, I have it in writing with my family that I will not seek any treatment after the first recommendation, I will not do experimental treatments and I will not prolong a life of suffering. Rather go out under my own terms.
I'm forever grateful to Jake for writing his experiences in such detail and candidness.
This is his last article I think. https://news.ycombinator.com/item?id=41157974