alt Hacker NewsI have been disabled on medicare for 23 years. I have often told my doctors that if they spent the time and money to look at my biology more closely it would have saved the tax payers so much money from medicare and likability payments.
Health care is actually sick care.
I obviously have a genetic condition because it runs through my mothers side of my family, but they refuse to look at my genetics. So, did. I found things. I begged a researcher to test me for a special sort of immune deficiency (ADA Deficiency) . The tests shows I have a partial immune deficiency. I showed it to my doctor and nothing.
When my condition flares up (Too mush ATP and GTP) it effects my brain and nervous sytem and I have to be institutionalized. Five times now. I keep telling them my mood problem is caused by an immune deficiency but now one cares.
Sorry, end of rant.
Replies
Insurance, and I presume Medicare in particuar, will generally only pay for the standard of care. They don't care about you as a unique patient, you are instead an average one.
Have you tried contacting Every Cure to see if they could help with identifying an existing drug which might be effective for your condition?
https://everycure.org/